can't decided
in school when they put the vest on her she knows its time to settle down.
last night after DH took the kids out for an afternoon of playing at the playground, I spent the time cleaning, I really lost track of time(it was so nice to be able to clean without having to clean around kids) so when DH pulled in with the tired sleepy kids at 6 PM I had not even thought of making dinner, so we all got in the car and went to Bickfords. Bickfords is a family restaurant that serves breakfast all day, but also has other food, so it's great for us, DH can get his salad, I get my chicken sandwich, and the kids all get the JR meal (one egg two strips of bacon, and two pancakes) child heaven LOL It's also good because the kids can be a little loud and it's sort of expected KWIM? Well last night they had the redsox on all the tvs, and there was a bunch of big parties there, you know Messy feeds off of other people's energy So the huge group at the next table was loud and happy laughing excited....you know what that means right?
well back to the question about the vest.
could have used that vest last night at dinner when she wouldn't settle down to eat and ended up running into a coffee pot. Thank God it was the older waitress that knows us well, who was walking with it, because she saw her coming and quickly turned herself around and shielded messy form the hot coffee...no one got hurt...well the waitress said she wasn't hurt. Seriously she should make the highlight film on ESPN she did such an awesome job of preventing an injury
there is a debate if you use a vest too much the child becomes used to wearing it all the time and it is no longer effective, on the other hand she ran into a freaking coffee pot.
I've seen her thrashing about at school, and Susan her aid would slip on the vest and instantly she is calm and happy to be where she is. They also use the vest when it is time for her to eat her snack, otherwise she will just run all over the place.
I don't want to mess up what they are working on by overusing it.
on the other hand she ran in to a freaking coffee pot.
on the other hand they are kind of expensive
I don't know how to sew....seriously I got an "F" in sewing in school I'm like famous for sewing my apron to my shirt. I mean it's sort of like a phobia, like math phobia, only it's sewing phobia...seriously DH sews buttons on because I screw it up LOL
can I just get a vest with pockets and put heavy stuff in them LOL
what do you all think?
Saturday, July 12, 2008
Friday, July 11, 2008
so I just read the headline on the news
Dow below 11,000 for first time in two years
Index slumps amid fears over mortgage finance firms Fannie, Freddie
oh man I gotta call my therapist!
Messy starts school on monday
The bus company has not yet called me to set up a pick up time
I called them and got a pleasant woman who told me that they are not yet done figuring out the route and we will be called later today
kind of last minute dontcha think?
*sigh*
dh is on his way home and he is taking the kids so I can have some kid free time
I will believe it when I see it
I am sure he was on his way out of the building and someone stopped him to ask him a question or to have him check out their computer problem
wow I am pretty negative
Messy is not happy about starting school, she isn't happy about anything new but she will be after a bit I am sure.
oh my town the only thing they do for special needs kids is a form with an assist to evacuation plan. how lame O can ya get? I wish I would have called them myself because I would have told them not to bother sending me the form, it's not like she will be home alone and need someone to evacuate her should there be a disaster.
:(
maybe I will call them myself and educate then on the need for a better program?
*sigh*
I called them and got a pleasant woman who told me that they are not yet done figuring out the route and we will be called later today
kind of last minute dontcha think?
*sigh*
dh is on his way home and he is taking the kids so I can have some kid free time
I will believe it when I see it
I am sure he was on his way out of the building and someone stopped him to ask him a question or to have him check out their computer problem
wow I am pretty negative
Messy is not happy about starting school, she isn't happy about anything new but she will be after a bit I am sure.
oh my town the only thing they do for special needs kids is a form with an assist to evacuation plan. how lame O can ya get? I wish I would have called them myself because I would have told them not to bother sending me the form, it's not like she will be home alone and need someone to evacuate her should there be a disaster.
:(
maybe I will call them myself and educate then on the need for a better program?
*sigh*
alright I just woke up and I might be grumpy but...
I looked at Rosie's blog and I was reading her "ask Ro" and someone sent in a rant I really felt the need to reply. Of course no one will see my reply because 7 million people send in stuff to "ask Ro" and the chances she will print mine is small so i will put it here :)
Ask Ro:
Ok it's one of those shoe moments.
maybe they hurt their foot.
maybe they used to work in a store and remember how much fun it was when it was their turn to go gather carts and they want to give someone that opportunity.
maybe they used to work in a store and between people putting away their own carts, and people using the self checkouts, and bagging their own groceries they lost their job.
maybe the last time they put the cart away, they pinched their finger and now have a fear of cart corrals?
Maybe they have kids and they know that they really like it when someone doesn't put the cart away because they can park near it and they don't have to walk over to a corral to get a cart to put their baby in, and they want to do the same for another mommy.
Maybe they just took their kids out of the cart and put them in the car, and they have a decision "put cart away and leave kids" or "leave cart here and not have to worry"
maybe they ARE lazy
there is no law about putting carts away, it's a suggestion
there is a law about letting your car idle
there is a law about walking away and leaving your kids in the car
yes folks someone once called the cops on me because I was standing outside my car leaning on it, talking to a friend while my kids slept in the car...and they thought that it was child abuse...thankfully the cop (a nice lady) thought it was funny LOL but what would she think if I had walked 10 yards away????
Ok seriously I need to go make some coffee
LOL
Ask Ro:
Kelly Writes:
Sorry, I must rant...WHY are people so lazy in a store parking lot that they won't put their carts in the cart corrals?? I've seen people struggle to put them up on a curb instead of walk 10 yards.
path of least ...
Ok it's one of those shoe moments.
maybe they hurt their foot.
maybe they used to work in a store and remember how much fun it was when it was their turn to go gather carts and they want to give someone that opportunity.
maybe they used to work in a store and between people putting away their own carts, and people using the self checkouts, and bagging their own groceries they lost their job.
maybe the last time they put the cart away, they pinched their finger and now have a fear of cart corrals?
Maybe they have kids and they know that they really like it when someone doesn't put the cart away because they can park near it and they don't have to walk over to a corral to get a cart to put their baby in, and they want to do the same for another mommy.
Maybe they just took their kids out of the cart and put them in the car, and they have a decision "put cart away and leave kids" or "leave cart here and not have to worry"
maybe they ARE lazy
there is no law about putting carts away, it's a suggestion
there is a law about letting your car idle
there is a law about walking away and leaving your kids in the car
yes folks someone once called the cops on me because I was standing outside my car leaning on it, talking to a friend while my kids slept in the car...and they thought that it was child abuse...thankfully the cop (a nice lady) thought it was funny LOL but what would she think if I had walked 10 yards away????
Ok seriously I need to go make some coffee
LOL
Thursday, July 10, 2008
me on a soapbox
Remember when mom said "stop and think before you speak" and "if you can't say anything nice..."
you know right?
My mother used to say "never judge anyone unless you walked a mile in their shoes...then your feet will be hurting and you will remember that we shouldn't be judging people anyway" LOL
My mother was clever sometimes :)
ok so if you are out and about and you see someone pushing a stroller and the kid in the stroller is way too big for it, what do you think? you are thinking that the parents are just letting the kid be lazy, or you may even be thinking that parent's letting their "too big for a stroller" kids ride in a stroller is "the reason for childhood obesity" you may even look at the parent and see she is overweight and think "gee do you want your kid to be fat like you" ...yeah? it's ok there are no thought police...yet anyway...you can think whatever you want...but please please please do not say this too the parent because you do not know what is going on. maybe the child is special needs, maybe their insurance wont pay for a special needs stroller, maybe they are just getting by???
if you see a kid in a harness you can look at them and think "wow I'm so glad we don't treat our kids like DOGS" sure go ahead and think it, but please do not say it out loud!!!!!
surely you do not know what it is like for your autistic child to switch instantly from a "happy walking with you" kid to a "bolting away" kid!!! surely you have never searched stores, for a kid who hides, surely you never had your two year old (who should know better) wander away in central park, you have never had to make a store lock their doors so you can find your child hiding behind a carpet display, you have never called and called to a child knowing they wont answer you anyway!
Yes I put my "too big for a stroller" kid in a stroller I do it because sometimes she gets upset and sitting in a stroller calms her, I do it because sometiems it's hard trying to keep an eye on her and her sister at the same time, nine times out of ten the 2 year old is wanting out of the stroller anyway so it's empty.
and yes I put harnesses on my two and a half year old, and my five and a half year old
and I am proud to do it!
and I don't care what other people think
I like to keep my kids thankyouverymuch!!!
you know right?
My mother used to say "never judge anyone unless you walked a mile in their shoes...then your feet will be hurting and you will remember that we shouldn't be judging people anyway" LOL
My mother was clever sometimes :)
ok so if you are out and about and you see someone pushing a stroller and the kid in the stroller is way too big for it, what do you think? you are thinking that the parents are just letting the kid be lazy, or you may even be thinking that parent's letting their "too big for a stroller" kids ride in a stroller is "the reason for childhood obesity" you may even look at the parent and see she is overweight and think "gee do you want your kid to be fat like you" ...yeah? it's ok there are no thought police...yet anyway...you can think whatever you want...but please please please do not say this too the parent because you do not know what is going on. maybe the child is special needs, maybe their insurance wont pay for a special needs stroller, maybe they are just getting by???
if you see a kid in a harness you can look at them and think "wow I'm so glad we don't treat our kids like DOGS" sure go ahead and think it, but please do not say it out loud!!!!!
surely you do not know what it is like for your autistic child to switch instantly from a "happy walking with you" kid to a "bolting away" kid!!! surely you have never searched stores, for a kid who hides, surely you never had your two year old (who should know better) wander away in central park, you have never had to make a store lock their doors so you can find your child hiding behind a carpet display, you have never called and called to a child knowing they wont answer you anyway!
Yes I put my "too big for a stroller" kid in a stroller I do it because sometimes she gets upset and sitting in a stroller calms her, I do it because sometiems it's hard trying to keep an eye on her and her sister at the same time, nine times out of ten the 2 year old is wanting out of the stroller anyway so it's empty.
and yes I put harnesses on my two and a half year old, and my five and a half year old
and I am proud to do it!
and I don't care what other people think
I like to keep my kids thankyouverymuch!!!
Wednesday, July 9, 2008
back from the Hospital
So she doesn't have any of the things they tested her for
no known metabolic disorders
no fragile X
no Rett
No Chromosome 16
we breath a sigh of relief
and we note that it all gets easier as we go along.
well not the driving in the city! next time we check and make sure we are not leaving the hospital the same time a redsox game gets out sheesh
I remember when I used to get upset when there were no answers
now I am wiser and I know that sometimes no answer is a good answer
and now I want to say how cool is Children's hospital Boston!!!!
my kid was upset when we left because she wanted to stay there and sleep there ROFL
no known metabolic disorders
no fragile X
no Rett
No Chromosome 16
we breath a sigh of relief
and we note that it all gets easier as we go along.
well not the driving in the city! next time we check and make sure we are not leaving the hospital the same time a redsox game gets out sheesh
I remember when I used to get upset when there were no answers
now I am wiser and I know that sometimes no answer is a good answer
and now I want to say how cool is Children's hospital Boston!!!!
my kid was upset when we left because she wanted to stay there and sleep there ROFL
Today we see the genetics department at Children's hospital
ETA a pic of me and messy that DH took
I have no idea what they could possible say
"her autism is genetic and you have it too!"
I got a letter from the hospital which conveniently was also on their website LOL I love copy/paste :) this is boring so feel free to look at this picture of a leopard and scroll past it :)
isnt he CUTE!
I love the part where they say having someone with you to sit in the waiting room with the child is helpful
The member(s) of the team you meet with will ask questions about: 
- The pregnancy and birth history
- Developmental history
- Medical history, and
- Family History
Sometimes sensitive issues, such as adoption or exposures during pregnancy, may arise when gathering information on your child. Should there be something you do not wish to discuss with your child present, it may be helpful to bring someone to the visit with you. This person can sit with your child in the waiting room while the sensitive topic is discussed. Next, the team member(s) will review the history and perform a specialized physical exam. Tests such as X-rays or an MRI may be ordered to help make a diagnosis. Genetic tests may also be ordered based on the history and/or physical examination. These are often blood or urine tests, and the sample can be collected the same day as your appointment. Referrals to other specialists or specialty clinics within the hospital may also be made. A follow-up appointment will be scheduled to discuss the results of any testing ordered and the results of other evaluations. For new patients, the first visit typically lasts about 1 hour. Return visits are usually shorter than this. Information Received From the Appointment The team member you meet with will discuss the findings of the evaluation with you. If genetic tests are ordered, the team member will explain in detail why the test is being ordered and the implications of the test during your visit. The results of any genetic testing will be fully discussed with you at a scheduled follow-up visit. The goal of a genetics evaluation is to provide a diagnosis. Unfortunately, a diagnosis cannot always be made despite the extensive evaluations performed. If a diagnosis can be made, we will share with you what is known about the condition, including the following:
- Cause
- Pattern of inheritance
- Prognosis
- Recurrence risks
- Available resources
- Possibilities for prenatal diagnosis
- Testing for family members
The Genetics Program may provide ongoing care for you, or we may refer you to a specialist or specialty program within the hospital. If a diagnosis cannot be made, we will give you as much information as possible so your family can make the best decisions. In these instances, we often recommend a follow-up visit at some point in the future as our knowledge of genetics and available genetic testing is always increasing and certain genetic conditions become more apparent with time. After the Appointment A letter documenting what was discussed at your appointment, testing ordered, and/or referrals made will be prepared after your visit. This letter will become part of your or your child's medical record at Children's Hospital. A copy will also be sent to you and the referring physician. Your evaluation and diagnosis will not be discussed or shared with family members or professionals from other institutions without your written consent.
ain't gonna happen I be a single mother today whoo hoo!
in response to me whining about him not doing anything My hubby took a thing off the list that he knows I didn't want to do :) so he is calling the police department to set up whatever thingy they do for kids with autism I guess they keep info on record for a quicker response should she take off, and possible a tracking device for her if necessary . I hate making phone calls, but I really hate calling the police department.
ah did I ever mention that since the big dig I do not enjoy driving in Boston, I mean I really am having trouble remembering where everything is.
stress stress
off we go
Tuesday, July 8, 2008
I got my peace shirt
I have wanted one for a long time, but it has always been "that much for just a plain old shirt!!!"
anyway the new me did some shuffling of the budget and ended up with enough to pay for my shirt and the really high shipping cost LOL
of course when I got it I realized why, tell me why are they using two big pieces of bubble wrap to ship a t-shirt?
silly!!!
anyway I put it on and it is a tad snug so now I have incentive to stay on my new healthy living program.
Now My boy wants one LOL
funny how I don't think twice about paying shipping for the other members of my family but for me it's always a shuffle????
I've been waiting for the shirt to take a picture of Day one of my 365
I'll be taking the photo later because now I have to get dinner ready freddy :)
anyway the new me did some shuffling of the budget and ended up with enough to pay for my shirt and the really high shipping cost LOL
of course when I got it I realized why, tell me why are they using two big pieces of bubble wrap to ship a t-shirt?
silly!!!
anyway I put it on and it is a tad snug so now I have incentive to stay on my new healthy living program.
Now My boy wants one LOL
funny how I don't think twice about paying shipping for the other members of my family but for me it's always a shuffle????
I've been waiting for the shirt to take a picture of Day one of my 365
I'll be taking the photo later because now I have to get dinner ready freddy :)
garden troubles
OK I did buy some bulbs from a fund raiser and planted them in my yard a few years ago, but that was before we found the New England Wild Flower Society and learned about the importance of only growing plants that should naturally grow in your area.. and now we know why and I can't guarantee I have all the facts correct I am trying to learn how to do things right.
these lilies which are from Asia, have attracted these beetles, also from Asia, now these Beatles do not naturally occur in the US so there is no predator to get rid of them
and I do not use pesticides so how to I get rid of them?
Any advice?
it's very bright
I don't like using pesticides, but on top of that I live in a protected conservation land so we are not allowed to use them, so even if I wanted to go against my wishes to be pesticide free, I couldn't anyway
he boy checking out the bug
this is a bug vacuum but with the top off he can use the magnifying glass to look at the bugs
My hero
he caught 4 of them and is hunting more
could these be what has eaten the leaves off of the purple cone flowers?
anyone know?
thanks for all the gardening advice
some day I might be able to have a yard that doesn't look like a hillbilly lives here :)
From the weekend---protesters
One thing I found really happy and sad
we went to Bedford MA on Thursday night
was going to the whole foods store, lots of traffic, and we came upon the center square part of the town, obviously there was something going on for 4th celebration, I could see some people the green area. as the traffic moved along I got closer and saw that they were elderly people and they were carrying signs, I thought "that is sweet" then as I got closer I read the signs and they lifted my spirit so high!
"end the war" "Honk for peace"
I love this country I mean seriously these people looked like they had walked over from the nursing home, and they were protesting the war HOW totally 60s how totally AWESOME! it gives you hope to see something like that.
I reached for my horn and honked several times, when it dawned on me
traffic everywhere slow moving, lots of people
"Honk for peace"
HONK FOR PEACE
it was silent, I was the only car beeping
I looked into the cars that were coming in the other direction, the drivers were all looking forward, gripping their steering wheels LOOKING AWAY
when I came up the the center and I could see the man with the "honk for peace" he was looking at me, waving at me smiling but it seemed like a strained smile. maybe that sign is heavy?
I honked and honked and I was the only one.
kind of sad, I got to whole foods and met DH there and we went in
had our dinner, and shopped a bit and left the traffic was gone, and the protesters were gone
I wish I had pulled over and got my kids out and gone up to them and talked to them.
I don't know how anyone could not honk for peace!!!!!!!
my favorite bumper sticker that is on a car of someone that goes to my church :)
"When Jesus said "love thy enemies" he probably meant "don't kill them"
then a friend told me she saw one that said “You cannot love your enemies and bomb them simultaneously”.
I feel as though the War in Iraq goes against God and I am shocked at how many people don't agree.
we went to Bedford MA on Thursday night
was going to the whole foods store, lots of traffic, and we came upon the center square part of the town, obviously there was something going on for 4th celebration, I could see some people the green area. as the traffic moved along I got closer and saw that they were elderly people and they were carrying signs, I thought "that is sweet" then as I got closer I read the signs and they lifted my spirit so high!
"end the war" "Honk for peace"
I love this country I mean seriously these people looked like they had walked over from the nursing home, and they were protesting the war HOW totally 60s how totally AWESOME! it gives you hope to see something like that.
I reached for my horn and honked several times, when it dawned on me
traffic everywhere slow moving, lots of people
"Honk for peace"
HONK FOR PEACE
it was silent, I was the only car beeping
I looked into the cars that were coming in the other direction, the drivers were all looking forward, gripping their steering wheels LOOKING AWAY
when I came up the the center and I could see the man with the "honk for peace" he was looking at me, waving at me smiling but it seemed like a strained smile. maybe that sign is heavy?
I honked and honked and I was the only one.
kind of sad, I got to whole foods and met DH there and we went in
had our dinner, and shopped a bit and left the traffic was gone, and the protesters were gone
I wish I had pulled over and got my kids out and gone up to them and talked to them.
I don't know how anyone could not honk for peace!!!!!!!
my favorite bumper sticker that is on a car of someone that goes to my church :)
"When Jesus said "love thy enemies" he probably meant "don't kill them"
then a friend told me she saw one that said “You cannot love your enemies and bomb them simultaneously”.
I feel as though the War in Iraq goes against God and I am shocked at how many people don't agree.
Monday, July 7, 2008
Hi guys
sorry I was crabby earlier
yes I do know single parenting is hard, I didn't mean to imply it wasn't
some days are harder than others
did you know that a lot of the experts say that 80% of marriages with an autistic kid end in divorce.
sometimes I question that statistic And I do wonder if it's true
but I do know it's hard, and I do know that my husband wont even take a day off of work to go with me to an appointment with the genetics doctors...I wonder if I am just doing this all by myself anyway. And when five minutes after my comforting the boy when he was so upset because he doenst get to play baseball the husband yells at him for having to go to the bathroom,I wonder if we are even on the same planet.
Yes I toy around with it in my head
I love the guy and I wouldn't split with him just because I need a cup of coffee :)
I just want him to take visitation rights once in awhile :)
yes I do know single parenting is hard, I didn't mean to imply it wasn't
some days are harder than others
did you know that a lot of the experts say that 80% of marriages with an autistic kid end in divorce.
sometimes I question that statistic And I do wonder if it's true
but I do know it's hard, and I do know that my husband wont even take a day off of work to go with me to an appointment with the genetics doctors...I wonder if I am just doing this all by myself anyway. And when five minutes after my comforting the boy when he was so upset because he doenst get to play baseball the husband yells at him for having to go to the bathroom,I wonder if we are even on the same planet.
Yes I toy around with it in my head
I love the guy and I wouldn't split with him just because I need a cup of coffee :)
I just want him to take visitation rights once in awhile :)
Do you ever wonder if it is worth is?
Today I am wondering
when DH remembers that we don't have any coffee and I offer to drive to the store to pick some up. "no I don't have time I'll just pick up some coffee while I am out" to witch he went on the computer for longer than it would have taken me to zip tot he store....what gives?
yeah thanks buddy
and thanks for taking all the kids stuff out of the car and throwing into the van....ever think it might be just a tad helpful to install the car seat for me?
then he says "are you ok?
"No I'm not ok I am tired of having 700 hours worth of stuff to do in a 24 hour time period, and i didn't really need "take the three kids into the grocery store to pick up coffee" to be one of them." his response was to leave so now we have the screaming because "we want daddy not mommy, daddy is fun mommy is yucky" or "how bout you go to work and daddy stay home"
yes I am not doing well this morning
It's going to be awhile before I can do this, sometimes i think maybe being a single parent might be easier...wouldn't it be nice to have a few hours every one in awhile when he has the kids and I can do laundry uninterrupted? or I can take a nap how pathetic am I?
*sigh*
Ok enough whining!
today Messy has a drs appointment more blood tests
I have to get caught up with my paperwork too I've been slacking off big time :(
I might not be around much this week
we have a few drs appointments this week.
I really want to blog about the weekend but I am so stretched for time right now so I will probably blog more later :)
now I am off on a quest for coffee and a drs appointment
and maybe the playground if it doenst rain
gosh I might just truck my butt to the Kmart and pick up one of those kiddie pools
when DH remembers that we don't have any coffee and I offer to drive to the store to pick some up. "no I don't have time I'll just pick up some coffee while I am out" to witch he went on the computer for longer than it would have taken me to zip tot he store....what gives?
yeah thanks buddy
and thanks for taking all the kids stuff out of the car and throwing into the van....ever think it might be just a tad helpful to install the car seat for me?
then he says "are you ok?
"No I'm not ok I am tired of having 700 hours worth of stuff to do in a 24 hour time period, and i didn't really need "take the three kids into the grocery store to pick up coffee" to be one of them." his response was to leave so now we have the screaming because "we want daddy not mommy, daddy is fun mommy is yucky" or "how bout you go to work and daddy stay home"
yes I am not doing well this morning
It's going to be awhile before I can do this, sometimes i think maybe being a single parent might be easier...wouldn't it be nice to have a few hours every one in awhile when he has the kids and I can do laundry uninterrupted? or I can take a nap how pathetic am I?
*sigh*
Ok enough whining!
today Messy has a drs appointment more blood tests
I have to get caught up with my paperwork too I've been slacking off big time :(
I might not be around much this week
we have a few drs appointments this week.
I really want to blog about the weekend but I am so stretched for time right now so I will probably blog more later :)
now I am off on a quest for coffee and a drs appointment
and maybe the playground if it doenst rain
gosh I might just truck my butt to the Kmart and pick up one of those kiddie pools
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